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365 Days

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August 22, 2018
9:37pm

Last year, at this time, my baby was alive. He may already have decided to kill himself. I don’t know. I was at work. Z was at work, T was in Salem.

He was home, alone, thinking. No one to talk to. Very few bothered. They would have had to go out of their way, taken time. Not even the doctor cared. No one bothered to call him back. He had an appointment for a phone call. No one called. He didn’t matter.

They would get to it later. Tomorrow.

Chris didn’t have a tomorrow.

I knew he was badly off, but he had said he would wait and try this new doctor. Another new doctor. New doctor number 7,822. I set it up. Everything was going to be OK. He promised to wait.

He didn’t promise to wait past the time that he was supposed to talk to the woman at Goodwin.

I came home sometime after 11:30pm. As was frequently the case, he was asleep in his chair in front of his computer.

His computer. His lifeline. When it had broken down, T spent $1000 to get it working again. It was all Chris had outside his family. He had had to stop working. It just made him want to die, even more, being out there, with them. He watched videos that made him happy and he would talk to his friends. I didn’t know that most of his “friends” had stopped talking to him. I don’t know who was left. His good friend was. He and his fiance. They always found some time. Chris had just been in their wedding.

When I saw the wedding pictures, later, I saw Chris all alone, even there. Apart. Standing on the outside wanting to be part. But the urge to die was much stronger. Again, there was no one there for him to be with. Bride and groom made time, on this chaotic day. But, he was still alone.

Your mommy and your brothers can only go so far.

Chris had a mommy who was crazy. That sure didn’t help.

I had gifted him with my bipolar disorder. My genes killed him. Probably my behavior over 26 years of his life. He loved me, but he didn’t like me. I annoyed him, mostly.

When he found pieces of my mother’s ring broken. He had taken it to the bride to see if he could get it fixed for me. He knew it was the most important thing I had. He came to me and told me he had found the pieces and it was going to be too expensive to fix. He had wanted to do something important for me.

I was keeping the pieces. He tried to make me happy; to show me that he loved me. He wasn’t likely to say it. He must have used all of his money to buy me a new one. I like it better than the one before. Prettier, given with love by one named on it.

He tried to make me happy; to show me that he loved me. He wasn’t likely to say it. A movie I had wanted to see but had missed came out. I really, really wanted to see it. He bought it for me and set me up in his ultra comfortable chair and played it on his widescreen TV for me.

A few years before, he had taken a lot of time and chosen 3 movies that I loved and he gave them to me for my birthday. I didn’t watch them for a while because it was difficult for me to use the DVD player.

Much too much later, it occurred to me that he didn’t know why and all that work he had done for me was thrown back at him. I didn’t care. He went, himself, to pick them out and buy them. Then he felt as if I didn’t care enough to watch them. T finally played one for me and the three of us sat together and watched it. I think then he understood.

Just in the year before he died, a game that I had played when they were little was coming out on Steam. A new version. He bought it for me and the controller to play it. He remembered and brought that forward to make me happy.

So, I came home from work and saw him sitting in his chair. I assumed he had been talking to his friends. I kissed the top of his head.

For the last time. I kissed the top of my baby’s head.

In the morning, I woke up late and ran/staggered, half asleep, to the car to get Z from work. We stopped and got him breakfast and then went home. He went upstairs. He passed the room in which his brother was lying dead on the floor. He didn’t look in. He assumed he would be up in the room they shared, asleep in his bed.

I backed out of the driveway to go get Chris some breakfast. He loved iced coffee. It was one of the few things we shared. I often brought them home for him or got one while we were out. I went to McDonald’s and got what he liked and drove home. I saw him on the floor, but he had a habit of sleeping in strange ways in strange places. I said to him, through the doorway, “I brought you breakfast!” He didn’t move. He slept soundly. I went in and said it again. There was something. I wasn’t sure. I didn’t know what, so I poked him. His body moved. I shook him. He was totally stiff.

He couldn’t be dead. Z would be able to wake him up for me. I didn’t want to scare Z, so I called. Then I yelled. Then I screamed. Z ran. I asked him to wake Chris. I couldn’t wake him. Shake him for me. I just can’t wake him.

Neither could Z.

Sometime after I kissed him, he woke up and decided he was done. He took Klonopin and Seroquel and went to sleep. I think he was trying to get out of the house so I wouldn’t always have a picture of him dead in the house. OR he was trying to get upstairs to tell me because he had changed his mind. He had changed his mind before. Or I had found him before.

I am pretty sure that, even in those last moments, feeling, distraught, forgotten, and unloved. He thought about us and how he could make it easier for us by not being in the house.

Yeah.

Alone, forgotten, unloved.

He still loved us.

Last year, at this time, he still existed.

After midnight, that won’t be true.

This is an endpoint for me. Time will begin to loop without him. Last year he was here. In hours, not anymore.

There will begin to be more time that he has not existed.

I still breathe him every day.

Breathe in. Breathe out. Repeat.

I am Not a Stone

While a stone is impenetrable, it has no heart. It can be showered with abuse showing no mark, yet it will break.

I am not a warrior. There is nothing to fight, just a morass. I step, get stuck, step again. Then I lie down and cry, sinking deeper.

I cannot fight. There is nothing to fight. I just pull at air, expel it and pull again. I only do that because my brain commands it. I live and live and live, waiting for the line between knowing and not knowing. How long before I forget Chris? After my brain has turned to stone, I will no longer have to pull in that air. I will finally be dead. Chris will not die just yet. His brothers will give him life, while remembering his death,

Frontotemporal disorder

Apparently, I might have another 10 whole years of life. Perhaps longer, if I am lucky. A body with a hardening substance rattling in my skull.

I can’t imagine. I don’t want to imagine. Now, I stand in an open doorway, struggling for breath and unable to step through.

It is like in very cold or very hot days when I open the door to the house and hit the wall of heat or cold. An invisible barrier, but quite impassable. Halted by that which is not really there but effects me nevertheless. A wall of the atmosphere of that keeps me alive but I can no longer move through.

My brain hardening. No charges moving back and forth carrying information. Just plopped there getting harder and harder.

I wonder what it will feel like. I wonder if I will know. I do right now and it ain’t so grand.

Gifts

One of the things I found out recently is that my frontal lobes are hardening, faster than than than they are supposed to be.

I wasn’t aware that frontal lobes hardened. I was told that it was normal.

It isn’t. I have dementia.

My son and I cried together for a bit. He went to do research and came back feeling better. It didn’t mean that I was going to be helpless soon.

I can feel it every day. It isn’t like forgetting a word or where you put your glasses or leaving something odd in the freezer.

I feel quantities leave me and I know they are gone. I don’t know what they were. My son will say something and I have no idea what he is talking about. We had spent some time discussing it the day before. I know there are holes because I come to the edge of one and feel the step into nothingness.

Completely gone.

I will be completely gone.

I will die of dehydration and starvation.

Might be for the best. I am not who I used to be. She was OK.

Donation

My brother-in-law was killed today. He was an organ donor. At the time of his death, no one said anything to my sister about organ donation and she was distraught and it did not come to her.

I called and found out that for 24 hours, there was still a great deal of his body that would be useful. This brings her great relief. He is gone. He is no longer in that empty shell. Let others see again, or walk again, or have breasts reconstructed. There are so many lives he can improve. Let his body be of use now that he no longer needs it.

Humanity

It isn’t Republican and Democrat. It isn’t Conservative and Liberal. It isn’t North and South. It isn’t the USA and Mexico. It isn’t Cis and so many, many other kinds of people. It isn’t Black and White in all of the myriad ways that can be understood. It isn’t all of these things that scare us or make us angry.

It is humanity. We are human beings. It is time to treat people as if they were people because, damn it, they are.

Who that you know would you want to be treated so painfully and disrespectfully? I know some people reject their very family members. How do you cast out your very family members? If you can do that, you can hate everybody and anybody else.

They do it because of an idea.

Let’s replace that idea.

We are human.

People are people. I’m sorry if you don’t understand them. They are still people.

How are the “others” treating you inhumanely? How do they hurt you? 

Many of my friends disagree with me, but they still treat me as a human being. They still give me respect. They give me gifts. If I needed any kind of help, they would help me. I am irritating and stupid and many, many, many bad things, or, at least, that is what some see. Yet, my friends treat me as a human being.

Why not do that with everyone else? They are human, too. Why do you allow people to be treated the way many treat cattle? Actually, there are laws that protect non-human animals. Why do you allow people who are different from you to be treated less kindly and with less respect than you treat other animals? Because they are the “others?” 

How do you decide who are the “others?” Does someone tell you? Do you think about it and decide? What do you think about? Where do you get your information? If you are deciding who is allowed to be human, you had damned well better use a lot of sources, not just some guy who said something you agreed with once.

People have agendas. They will lie, cheat, steal, cause pain, murder, and enslave. They will make up more. They will do whatever. Why? Because the “others” are not people. They make them not people so they can do horrible things.

If you need religion to help you act in a humane fashion, then use it. If you can tell right from wrong, good from bad, human from what? Human?

As a group we call ourselves humanity, but humanity is also the way we behave. You can treat other humans with humanity. Why do you choose not to?

Quickest Way to Death

Fortunately, everyone who knows me knows that I would rip their heads off if they suggested that maybe it is time for me to be getting over the loss of Chris.

I will never get over the loss of Chris. How could I? That utterly remarkable person stopped existing.

It doesn’t get better. It gets worse. You know what he would say, but he isn’t here to say it. You know that he would grow and change and get even smarter, wittier, and wiser.

It never would have occurred to me, before this happened, to suggest that someone’s grief over the loss of their child was unreasonably long. You just know it. You don’t even have to have a child to know that there can’t be any way to move beyond it. Now I know that I can’t even peak around it.

If I ever, ever, ever hear those words come out of someone’s mouth or see it written anywhere, all Hell will break loose. You think you have heard or seen me angry, try it. Just try it.

You have Grieved Long Enough

Fortunately, everyone who knows me knows that I would rip their heads off if they suggested that maybe it is time for me to be getting over the loss of Chris.
I will never get over the loss of Chris. How could I? That utterly remarkable person stopped existing.


It doesn’t get better. It gets worse. You know what he would say, but he isn’t here to say it. You know that he would grow and change and get even smarter, wittier, and wiser.


It never would have occurred to me, before this happened, to suggest that someone’s grief over the loss of their child was unreasonably long. You just know it. You don’t even have to have a child to know that there can’t be any way to move beyond it. Now I know that I can’t even peak around it.


If I ever, ever, ever hear those words come out of someone’s mouth or see it written anywhere, all Hell will break loose. You think you have heard or seen me angry, try it. Just try it.